At least that’s what everyone says ! And waiting I am. On November 29th 2018, thirty days after the surgery, I went back to Kansas City for an intensive round of hearing and vestibular (balance)…
Posts Published by ripearshot
Sorry, I’m Hard of Hearing
(As I delve into this social side of hearing loss, I feel I need to restate a disclaimer. These discussions are personal. They are based on my observations and experiences. Specifically this is about severe…
Hardware is Hard
If asked to make one overarching observation about the hardware it would be this: Its hard ! Its just not easy finding the right hearing aids and accessories to best mitigate your hearing loss. So…
Mechanics and Magicians
The genius mechanic has done his job, now its time for the magic ! Yesterday Dr Heinrich Staecker performed my gene therapy procedure. He is the one who designed how to surgically infuse the inner…
Going to the Hardware Store
While wondering how to start my discussion of the hardware and technology available, the first thing I thought of is the bizarre delivery system and health care model that “serves” the hard of hearing. (HOH)…
Its a little “scary” …
Oct 11, 2018 Kansas University Medical Center Just finished the last round of pre-surgery screening tests in Kansas City. MRI and meeting with Dr Staecker the lead researcher and the surgeon who developed the procedure…
Where to start..?
Where to start? Let’s start with this. Hearing loss is isolating, depressing, frustrating, exhausting and frightening. That’s how it is for the friends and family around us. Hope to have many opportunities here to note…
So far so….
…good My first trip to Kansas City and Kansas Univ Medical Center (KUMC) was Sept 10th. This was to meet members of the research team and go through a battery of tests to further screen…
A little bit about…. My Hearing Loss
To put the clinical trial in some context it seemed like a good idea to baseline how I found myself here on the verge of gene therapy. I lost my hearing late in life. Am…